Within 15 minutes of the birth of their baby daughter, Isobel, Abigail and Shaun knew that something was wrong. Here, Abigail shares her story of how Isobel was diagnosed with cystic fibrosis and her hopes for the future.
"It had been an easy pregnancy and I was expecting everything to be fine. But Isobel started being sick very quickly after being born, bright green stuff, and we knew that there had to be a problem.
"We were soon told that she needed to be transferred to Great Ormond Street Hospital (GOSH) for more tests"
Test results showed that Isobel had cystic fibrosis (CF). After three days in intensive care, Isobel was well enough to be transferred to a surgical ward at GOSH which became 'home' for the next three months.
Isobel now, doing her own physio on the trampoline!
Physiotherapy is a key part of Isobel’s treatment.
"We do her physio treatment for 20-25 minutes every day and rather than seeing it as a ‘treatment’, we have just made it part of her day’s activities. I try to make it as fun as possible by singing songs and adding in tickling games!"
GOSH check ups
Isobel still has regular check-ups at GOSH and sees the CF team frequently.
"I really like going - it’s reassuring to know she is doing well and the CF team are happy with her," says Abigail.
For the moment, the family is taking each day as it comes.
"There’s a lot to be positive about - we try to concentrate on that."