Sophia was brought to Great Ormond Street Hospital (GOSH) at one day old suffering from meconium ileus (MI), and was soon diagnosed with cystic fibrosis (CF). Lisa, her mum, talks about staying in the hospital accommodation and their time on Badger Ward.

Shortly after she was born, doctors at Southend Hospital noticed that Sophia had a distended belly. An X-ray of her bowel showed that Sophia was suffering from meconium ileus – a blockage of the bowel, and she was immediately transferred to GOSH. Sophia’s mum Lisa described how she “actually felt calmer knowing that I was coming here.”

Surgery at a day old

Having arrived on the intensive care unit at just one day old, Sophia underwent surgery to relive her distended bowel, and it was then that doctors diagnosed her with cystic fibrosis.

While Sophia stayed on intensive care and recovered from her operation, Lisa was offered accommodation in a hospital-owned building nearby so she could be close to her baby. “The accommodation was brilliant and it’s just 50 yards over the road so if you want to come over and see your baby you can. It’s amazing to have that.”

Recovering on Badger Ward

After a week on Intensive Care Sophia was finally well enough to be referred on to the respiratory ward. Sophia and her mum moved to Badger Ward, which meant that Lisa could stay on the ward overnight to be close to her baby.

“The staff are wonderful, says Lisa. They are so friendly and nothing is too much trouble at 3 o’clock in the morning when you’re trying to breastfeed. It’s just so much easier because I can just stay up here.”

Sophia on Badger Ward

Supporting GOSH

Meanwhile, Sophia’s father, who was training for a half marathon with two friends, decided to run it in support of Great Ormond Street Hospital Children’s Charity.

Lisa said that when her husband found out that Sophia would be treated at the hospital, he decided to raise some money for the charity. She explained that he wanted to do it “because of all the help I’ve had – the breast-feeding vouchers, the accommodation I’ve had and everything else.”

Sophia will visit the hospital every couple of months for check-ups, but she is now at home and according to her dad she's “the happiest baby on the planet”.

Take a look at the charity’s numerous challenge events, both in the UK and abroad, which you can take part in to help raise money for GOSH, whether you run, cycle, trek or skydive. Alternatively, find out about volunteering to support our fundraisers at events.