Friends of Adeona news

Read a selection of recent news stories from the hospital, handpicked for the Friends of Adeona.

Sir Michael Rake appointed Chairman of Great Ormond Street Hospital for Children NHS Foundation Trust

Sir Michael Rake, currently Chairman of the BT Group plc, has been appointed as the new Chairman of Great Ormond Street Hospital for Children NHS Foundation Trust and will take up the position in November 2017.

Drug derived from cannabis could spell the end of seizures for children with epilepsy

A drug derived from cannabis could have a life changing effect for thousands of people living with epilepsy, according to new research published today by Great Ormond Street Hospital (GOSH).

Q and A with Professor Bobby Gaspar, Director Designate of the Zayed Centre for Research into Rare Disease in Children

Professor Bobby Gaspar outlines his aims and vision for the Zayed Centre for Research into Rare Disease in Children that has been made possible thanks to a transformative £60 million gift from Her Highness Sheikha Fatima bint Mubarak, the wife of the late Sheikh Zayed bin Sultan Al Nahyan.

GOSH leads Europe-wide epilepsy network that could speed up diagnosis for patients

Diagnosing different types of epilepsy and deciding on the best course of treatment could become a much faster process thanks to a newly formed European network, coordinated by Great Ormond Street Hospital (GOSH).

Children’s charities join forces to boost research into childhood diseases

From Wednesday 1 February, children’s medical research charity Sparks will be joining Great Ormond Street Hospital Children’s Charity in a partnership which will result in a funding increase for pioneering and life-changing child health research.

Ground-breaking research into movement disorder

Researchers from the UCL Great Ormond Street Institute of Child Health (ICH) have discovered a new gene change that identifies a type of the movement disorder, muscle dystonia. This new discovery will allow doctors to more easily identify patients who, like Katie, could benefit from a treatment so effective that it can restore the ability to walk.

GOSH patient Imogen is Britain’s youngest double lung transplant recipient

GOSH patient Imogen Bolton has become Britain’s youngest double lung transplant recipient. Imogen had the operation at five months old after she was diagnosed with Aveola Capilliary Dysplasia, a rare condition that strikes only 200 children a year worldwide. Imogen spent a month at Great Ormond Street Hospital (GOSH) while she recovered from the complex surgery. Here, mum Ruth tells their story.

First day at school for Ruby and Rosie

Twins Ruby and Rosie had complex separation surgery at Great Ormond Street Hospital (GOSH) just a day after they were born conjoined in July 2012. Now four years old, the girls have joined the thousands of children from across the UK who have just started school.

Rhys strikes gold at the British Transplant Games

In 2009, Rhys contracted a virus which left him with severe heart damage and within five weeks he was put onto the transplant list. Incredibly a suitable heart was found just 24 hours later and he underwent a successful heart transplant here at Great Ormond Street Hospital (GOSH). As a result of his operation, he is now able to compete in sport and has represented the GOSH Heart and Lung team at the British Transplant Games for the last few years.

Swan sculpture lands at the Mittal Children's Medical Centre

A beautiful swan sculpture created by artist Chris Brammall ‘flew’ into place on top of the Premier Inn Clinical Building, part of the Mittal Children’s Medical Centre at Great Ormond Street Hospital (GOSH).