MGF - Pioneer

Tag news stories to appear on the Pioneer Online news lister 

Ground-breaking research into movement disorder

Researchers from the UCL Great Ormond Street Institute of Child Health (ICH) have discovered a new gene change that identifies a type of the movement disorder, muscle dystonia. This new discovery will allow doctors to more easily identify patients who, like Katie, could benefit from a treatment so effective that it can restore the ability to walk.

Valeria has specialist treatment after swallowing a watch battery

In April 2015, two-year-old Valeria swallowed a watch battery that caused serious damage in her chest. Over a year later, and with Valeria still needing regular procedures at Great Ormond Street Hospital (GOSH), her mum Jelena tells their story.

Accelerated approval granted for new muscular dystrophy drug

The prospect of widespread access to a life-changing drug for children with a rare muscular disorder is a step closer after the United States Food and Drug Administration (FDA) granted accelerated approval for a new medication.

GOSH patient Imogen is Britain’s youngest to double lung transplant recipient

GOSH patient Imogen has become Britain’s youngest double lung transplant recipient. Imogen had the operation at five months old after she was diagnosed with Aveola Capilliary Dysplasia, a rare condition that strikes only 200 children a year worldwide. Imogen spent a month at Great Ormond Street Hospital (GOSH) while she recovered from the complex surgery. Here, mum Ruth tells their story.

First day at school for Ruby and Rosie

Twins Ruby and Rosie had complex separation surgery at Great Ormond Street Hospital (GOSH) just a day after they were born conjoined in July 2012. Now four years old, the girls have joined the thousands of children from across the UK who have just started school.

Rhys strikes gold at the British Transplant Games

In 2009, Rhys contracted a virus which left him with severe heart damage and within five weeks he was put onto the transplant list. Incredibly a suitable heart was found just 24 hours later and he underwent a successful heart transplant here at Great Ormond Street Hospital (GOSH). As a result of his operation, he is now able to compete in sport and has represented the GOSH Heart and Lung team at the British Transplant Games for the last few years.

Visual health linked to social position

A new research study from the UCL Great Ormond Street Institute of Child Health, Great Ormond Street Hospital’s research partner, shows that poor visual health is associated with poorer social, economic, educational, and employment opportunities and outcomes.
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