Patients and families

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Indigo's story: from brain surgery to London Santa Dash

Just four years ago, Indigo, aged five was diagnosed with a brain tumour the size of a tennis ball and her prognosis was very poor. After tackling major surgeries, further brain injury and a long recovery with incredible determination and resilience, Indigo will be taking part in this year’s London Santa Dash to support Great Ormond Street Hospital (GOSH).

Out of the bubble

Henry has severe combined immunodeficiency (SCID), a group of rare, inherited disorders that affect the immune system. Patients like Henry often have to live in a sterile environment with a barrier between them and the outside world, giving rise to the term ‘bubble baby’ syndrome.

Henry was given a 10% chance of survival, until a bone marrow transplant from his older brother dramatically improved his condition. Henry’s mum, Maria, and three members of staff at GOSH who were instrumental in his care, share his story.

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What's it like being a play worker for GOSH’s Feeding Disorders team?

Karen Taylor is a play worker for GOSH’s Feeding Disorders team, which is part of the National Feeding and Eating Disorders Service (FEDS) and sits within the Department of Child and Adolescent Mental Health.

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