Patients and families

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Out of the bubble

Henry has severe combined immunodeficiency (SCID), a group of rare, inherited disorders that affect the immune system. Patients like Henry often have to live in a sterile environment with a barrier between them and the outside world, giving rise to the term ‘bubble baby’ syndrome.

Henry was given a 10% chance of survival, until a bone marrow transplant from his older brother dramatically improved his condition. Henry’s mum, Maria, and three members of staff at GOSH who were instrumental in his care, share his story.

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What's it like being a play worker for GOSH’s Feeding Disorders team?

Karen Taylor is a play worker for GOSH’s Feeding Disorders team, which is part of the National Feeding and Eating Disorders Service (FEDS) and sits within the Department of Child and Adolescent Mental Health.

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