Patient and family experience
Great Ormond Street Hospital Charity (GOSH Charity) provides strategic funding to support the patient and family experience at Great Ormond Street Hospital (GOSH).
Patient and family experience strategy 2025 – 2030
The mission of GOSH Charity is to transform the lives of seriously ill children.
In order to achieve this mission, we must invest in every part of our patients and families’ care, including their holistic and wellbeing needs. We want to provide patients and families with the best possible experience at GOSH and beyond.
Over the next five years, we will commit £40m to improving patient and family experience at GOSH.
It focuses on four objectives, expanding upon on our existing funding.
What are our four objectives?
1: Provide a “home away from home” for patients and families.
We're already:
- Helping GOSH families stay close to their child, by funding £1.5m every year for free family accommodation.
- Enhancing patient and family care by funding the GOSH Volunteer team, who manage 600 volunteers that provide a range of different support to families from way finding to emotional support, including taking therapy dogs into the wards.
- Increasing the amount of respite areas, workspaces and kitchen facilities for families by funding redevelopment projects at the hospital.
We will:
- Fund initiatives that improve the food for families at GOSH, providing more healthy, affordable and tailored options, as well as improving accessibility of food.
- Scope the development of non-clinical spaces for families across the hospital and ensure these are comfortable and homely.
- Support projects that improve access to outdoor space at GOSH, including for clinically vulnerable children and young people.
2: Provide fun and relief for patients and families
We're already:
- Providing opportunities for patients and siblings to be playful, build coping mechanisms and reduce anxiety, by funding a team of around 60 Play specialists and Play workers.
- Providing play for patients and siblings outside of normal working hours, by funding the Out of Hours Programme.
- Providing therapeutic support to help children achieve their development goals while at hospital, by funding the music therapy service.
- Providing popular gaming equipment to the wards of the hospital, including funding over 100 Xbox and Nintendo Switch devices.
We will:
- Provide more opportunities for entertainment throughout the hospital, alleviating boredom on wards and in waiting rooms.
- Enhance opportunities for children and young people to enjoy gaming in hospital, to provide joy and a sense of connection during their stay.
- Create more playful spaces at GOSH and improve access to therapeutic play for all patients, including on evenings and weekends.
- Improve access to therapeutic services for children and young people, and their families, such as music therapy.
3: Help families to cope
We're already:
- Providing long- and short-term holistic support to patients and families at GOSH, by funding the multi-faith Chaplaincy service.
- Providing GOSH families with free welfare advice, by funding the Citizens Advice Camden GOSH Family service.
- Safeguarding children at GOSH and supporting the wellbeing of their families by funding 40% of the Social Work team.
- Funding GOSH meal smart cards for all breastfeeding parents and low-income families of inpatients, giving them access to meals from the hospital canteen.
- Funding travel reimbursement for families who have had their appointment cancelled..
We will:
- Support the mental wellbeing of parents and carers while their child is in hospital.
- Provide more opportunities for families to connect with others in a similar situation to their own.
- Scope opportunities to alleviate the financial pressure of being in hospital as much as possible, to relieve additional stress on families.
4: Treat every patient as a whole person
We're already:
- Improving access to art and creativity for families, by funding posts and resources in the GOSH Arts team.
- Providing opportunities for transplant patients to compete in the British Transplant Games, by funding accommodation and travel costs.
- Providing a professional athlete mentoring scheme by funding a partnership programmes with Dame Kelly Holmes Trust.
We will:
- Increase our investment in the care of teenagers and young people by providing opportunities for them to socialise, develop and connect with the outside world.
- Provide all children and young people with opportunities to be artistic and creative, including those that experience challenges to self-expression (i.e., patients with learning difficulties or those who are immunocompromised).
- Invest in initiatives that empower patients to advocate for themselves, helping them to feel like an active participant in their care team.
How will we achieve our ambitions?
Service delivery funding
We fund ~£5m annually to provide services at Great Ormond Street Hospital that aim to improve the experience of patients and families, including the Play, Chaplaincy and Music Therapy teams. As part of this strategy, we have scoped each of these services and undertaken a landscape review of similar services at other trusts. For the first three years of the Strategy, we will focus on improving the provision for services that are over and above core NHS provision, as well as improving the ability for the services to be strategic and ambitious by moving into a longer-term funding model, funding 3 years of services at a time rather than 1.
Our new Everyday Impact Fund
We are launching a new funding opportunity called the ‘Everyday Impact Fund’, with an aim of funding small projects, to the value of about £5k, that can make a big difference to the experiences of patients and their families at GOSH. This opportunity will be open to all GOSH Staff across all departments and areas of the hospital and at all levels, ensuring that the call is inclusive and covers all aspects of a family’s experience. We recognise that frontline staff have a unique understanding of the day-to-day challenges for families at GOSH, and we are keen to support turning their ideas into action for the benefit of patients and their families.
Patient and Family Experience Panel
In order to ensure we are funding the most impactful projects; we have recruited a “Patient and Family Experience Panel” to help us with funding decisions and strategic steer. This panel is made up of people with lived experience: ex-patients and family members or carers with experience of NHS paediatric healthcare, as well as health professionals. To ensure the panel is diverse and inclusive we are offering an optional payment to the lived experience experts in recognition of their expertise and as a token of appreciation for their contribution and time. This panel will make funding decisions, as well as shape future services and initiatives to improve patient and family experience.
Special purpose funds
GOSH Charity has several special purpose funds (SPFs) which are a group of funds where each fund has a restricted purpose, dictated by the initial donation of funds. Funds can be used by GOSH staff on an ad-hoc basis to fund a variety of activities within the restricted purpose and aligned with the Charitable Expenditure policy. Funding must be approved by the relevant fundholders who are designated senior hospital staff members responsible for the oversight of a fund within the principles outlined in the SPF Policy.
GOSH Staff seeking funding from a specific special purpose fund or seeking to explore the various funds available should contact GOSH finance.
The charity is not currently opening new special purpose funds.