Giving back to GOSH

From three major eye surgeries to climbing the steps of the Walkie Talkie building, former GOSH patient, Prisha, tells us about her journey so far.

Meet former GOSH patient Prisha. 

Born with a vascular birthmark on the left side of her face – called a port-wine stain – she was diagnosed with the neurological condition Sturge-Weber syndrome, as well as the eye condition glaucoma. 

“My vision got so bad that when I was little, I thought I had only one eye,” she says. 

Up until recently, she has spent most of her life coming to GOSH as a patient. Over the years, she has been cared for by specialists in neurology, ophthalmology and dermatology, and has had three major eye surgeries by specialists at GOSH to save her vision. 

Throughout treatment, she felt she could rely on her family and GOSH staff to help her through it. 

“I remember how worried my parents and I would feel before my operations, and how the nurses and anaesthetists were always there to comfort and reassure us beforehand," she says. The dedication of the doctors, nurses, volunteers and all the other amazing staff have helped me become the person I am today.” 

Raising awareness 

Prisha is keen to share her experience with others and has a started making videos on YouTube about how she manages her condition with her studies, travel, work and social life. For Prisha, it’s about representation: 

“Growing up I didn’t have anyone to relate to. There was never anyone with a visible difference talking about it in the media. I hope that, as my channel grows, more people will be able to understand more about living with my condition, and can help other people with visible differences.” 

Giving back 

Towards the end of her time at GOSH, Prisha joined the Young People’s Forum (YPF), which represents patients aged 10 – 21. 

“Being part of the Young People’s Forum was one of the best things. It made me feel more positive and made me feel so lucky to have been able to have been treated at GOSH. Although we all had different conditions, it felt like we were in it together,” she explains. 

“More than anything, it made me feel less alone. At school I was one of thousands of other people, but I was that one kid who had a birthmark, but in the YPF I just felt like there were other people who were going through the same thing.” 

Taking on the Walkie Talkie Tower Climb 

Last year Prisha completed the Walkie Talkie Tower Climb for GOSH Charity, scaling all 896 steps and 36 floors of the iconic skyscraper on 20 Fenchurch Street. 

“It was tough! I was really nervous, but then I got so excited meeting the other people there. It was a great motivation!” she says. “Getting to the top and seeing my family and friends was so lovey to celebrate the achievements – and of course looking at the great view!” 

She also enjoyed the pre-climb warmup. “It was so interactive and fun! Everyone was so joyful, including the staff and volunteers, so that was great." 

“To everyone doing the challenge and fundraising for GOSH, thank you so much for supporting an amazing hospital and helping seriously ill children across the UK treated at GOSH.” 

Follow in Prisha’s footsteps and take on our Walkie Talkie Tower Climb, taking place this 29 February. Hurry – we’re currently offering 50% off registration fee! 

Sign up now!