Amy celebrates the Queen's birthday

Yesterday, Amy and her family joined thousands of people celebrating the Queen’s 90th birthday at a street party on The Mall. The Queen is the royal patron of over 600 organisations and Great Ormond Street Hospital (GOSH) is one of them.

Here Amy tells us about her experience at GOSH and how she enjoyed her day.

“18 months ago I was fit and healthy, until I caught a virus which affected my heart and caused severe heart failure. After six months in hospital, I was discharged from Great Ormond Street Hospital (GOSH) with a pump in my heart (LVAD) which will keep me alive until a donor heart becomes available.

"I was taken by air ambulance to GOSH in March 2015, in a critical state and have been under their care ever since. I attend heart failure clinic once a month, where my condition is reviewed. It’s a long day as I leave Chester at 9am and don’t get home until 7pm, but the doctors and nurses make it as enjoyable as possible and we talk about other things that I’m doing at home.

VIP treatment

"Last summer, when I was feeling a lot better, the transplant team organised a trip out around London on an open top bus and VIP treatment at Hard Rock Cafe, which was brilliant. I was also involved in promoting the Give to GOSH campaign at Christmas and got invited to the premiere of Peter and Wendy, where I met Stanley Tucci and the other actors. Whenever I have to stay at GOSH the fantastic nurses and play workers keep me entertained and look after my every need.

"When I’m at home I enjoy being with my friends and family, going to the cinema and have recently started horse riding as part of my physio. Having to carry my heartware bag can be tiresome, sometimes difficult with clothes choices and means that I have to have someone with me who is heartware trained. I also can’t get my device wet, which means no swimming or theme parks.

Giving something back

"I wanted to give something back to GOSH for their amazing care so my friends, family, scout group and school started fundraising. So far we have raised £8,000 through various charity events, so that this money can be used in the cardiac wing.

"I found out in February that I had been invited to the Patron’s Lunch, along with my mum, brother and step dad. I was excited and felt special to be invited. I then thought 'what shall I wear and what should I say to the Queen if I get the chance to meet her?'

"We all had a great day and I loved being part of this royal event. Next time we come to London I really want to see inside Buckingham Palace and I can’t wait to show my friends our photos of the Royal Family and tell them all about it.”